CCTV Care Campaign For The Vulnerable

Every person upon entering the care system, especially the vulnerable, deserves to be safeguarded. This CCTV campaign is not a reflection of the care administered by our carers, but by those Care Service Providers who place profit over care. Until this stops preventable neglect will carry on, continually failing our vulnerable and dedicated care staff. This Campaign seeks the requirement by law of the installation of CCTV in the communal areas, exits and entrances in ALL care homes

Jayne Connery, Campaign Organiser
Jayne and her mum

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I just want to thank all of the people involved especially Jayne , for all the hard work & effort that is being put into this campaign. I truly agree 100 % with their fight towards making care homes safer for the clients whom avail of these services. Our care homes should be safe & full of nothing but love, respect, dignity, joy, admiration and anything else that makes our elders live a good life in a safe & secure environment. Thank you thank you thank you. Keep up all the amazing work you do. X love & light.

Mel mc loughlin - 30/10/2017
Jayne Connery replied...

Mel

Thank you so much. We do work hard outwardly and behind the scenes. Heartfelt messages received daily from families and carers in support of CCTV in communal areas of care homes is overwhelming and hearing their experiences good and bad is what drives us on.

Thank you for your message of support. Always appreciated.

Jayne you are welcome. You are doing a Fantatic Job for CCTV Care Campaign for the Vulnerable. Amazing all the support you have been getting and thank you. I have been part of Journey all the way!

Steven Alan Hill - 27/09/2017
Jayne Connery replied...

Thank you Steven.

It's the incredible support we are receiving that's making our Care Campaign for the Vulnerable so successful

Sadly for the second time now the family has been put under huge amount of worry as my dad went missing again today from his care home in Sudbury. With police and staff out looking for him he was eventually found near a McDonalds, this is a fair distance from the home and he would have had to walked up a very long steep hill and crossed two roundabouts. It really does not bear thinking about, as this is one of the worst roads round town. It seems a visitor to the home didn't close the door behind them when they left. It is a lovely home, but we have mentioned CCTV to them but they refuse to have it installed. Something has to be done before something awful happens whether it be dad or another resident.

Paula - 23/08/2017
Jayne Connery replied...

Firstly, we are so relieved your father was found safely. This isn't acceptable. Those living with dementia rely and put their trust in professionals in charge of their care and day to day well being. It saddens and frustrates me a Care Service Provider will adamantly refuse to have CCTV in their care home when every street corner and many buildings including private residencies have CCTV for the publics protection. Installing CCTV on the exits and entrances would have solved this problem within minutes by viewing your father walking out the door and in what direction. Surely for a professional to say NO to this level of personal protection ESPECIALLY when dealing with vulnerable people is NOT placing the care needs of residents at the top of their agenda and is wholly irresponsible.

We are so pleased your Father is now safe, but the question will have to be asked, for how long ?

Loganberry Lodge, Stanway, where dad was not cared for properly, has had another QCQ inspection and has now been placed under Special Measures, due to two inadequate consecutive inspections.

Paula - 17/08/2017
Jayne Connery replied...

Paula

Thank you for updating us on your Fathers previous care facility. The immediate concern on hearing care homes entering special measures is safeguarding and protection of residents. It makes you wonder if they can't get the care standards correct after two attempts, should they be given a third chance? The first reaction would be to close the home down but this isn't always practical to vulnerabe residents or their families. The CQC could implement (enforce ) care providers who fail inspections , having to install cctv as a further precautionary measure helping safeguard /protect residents whilst action is taken to improve better care standards. There isn't a big enough deterrent to stop care providers going into special measures. If there were, maybe then , many would not be failing their residents and dedicated staff by continually floughting regulations.

"In my mother's ‘care’ home, like many others, there were little or no activities. The residents sat around the room, in a row; as if they were waiting to see the GP, staring at the walls or asleep. There was no stimulation other than a couple of TVs in the connecting lounges - different channels; Jeremy Kyle or a quiz programme - whatever happened to be on. There were very few channels to choose from. There was no DVD player. These were all residents living with dementia. The white board on the wall set out activities through the week; board games, dominoes etc. but these were ALL residents living with dementia. Some of them couldn't see and some wouldn't know what a domino was if it hit them on the back of the head.

I was placing my mum in this home – in desperation – as she had suffered neglect at the previous two homes. As a singer, in her day, I knew that activities, particularly music, was paramount to her. However, the home was clean and the staff seemed caring, and the food plan looked good enough. I knew that I, as a singer too, could take up the slack and be ‘her activity’. I knew I would be visiting every day (pretty much) to keep an eye on her.

Of course, none of the ‘activities’ on the board took place; other than when one of the lovely carers snatched a few moments of her hard earned shift; perched a tinsel wig on her head, and danced around the room to the CD, skipping and jumping, on the tired CD player

One time I mentioned to a Senior Carer about the importance of music, especially for those living with dementia. She replied “this lot are too far gone”. My mouth agape, I answered that “someone in a coma can still benefit from music”!

I had mentioned to the owners that if they bought a DVD player I would bring in musicals and concert DVDs. If their budget did not extend to outside entertainers, and they couldn’t afford an Activities Coordinator, then this would be very good stimulation for them. That was 18 months ago. No DVD - still. The CD player skipped merrily away until I brought in a sound system for them. I was told by the owners that THEY LOVED IT! Of course they did.

Over time I took up the slack for many of the residents. The CQC had marked the home as ‘GOOD’ in the field of activities. When a complaint was made about the lack of activities, I was asked to entertain every 2 weeks. There was going to be some other activity in between but it never happened. The only activity that took place after that was when they played music on my sound system. More often than not they played me a lot; CDs I had donated – which was fine.

Eventually, in desperation, I brought mum’s TV/DVD to the lounge for mum and her mates to watch some concerts etc. on DVD. They loved it. They all sat singing away to Cliff Richard – Live at the Albert Hall. I gave them chocolate and made them tea and they seemed very happy bunnies.

It was difficult to sit in peace however. Due to a lack of staff and often no one on the floor, I was regularly called upon by residents. “Nurse” … “can you help me”. There was no point explaining that I was here to see my mum and that I wasn’t a “nurse”, but I was there, watching the floor, watching the drugs trolley that had to be abandoned because the only carer left on that floor was toileting; tending to someone at risk of falling; answering the phone; the door; in the kitchen getting ‘tea’ together. Tea would consist of toast, jam sandwich, or a bowl of tinned spaghetti hoops, macaroni cheese or ravioli because the ‘cook’ had left and they couldn’t find a replacement; or the oven broke down for almost two months.

As a relative you could either sit and ignore it or help out. So you helped out but at what cost? Recently, a lady fell (not surprisingly) and hurt herself badly - so then what happens?

CCTV in communal areas would have picked all of this up!

JM - 14/08/2017

My cousins husband was diagnosed with vascular dementia at the age of 46 he is now in his 50s. The other day while at a day centre in Suffolk he walked out unnoticed. When realised that he was missing police were called and a helicopter put up. In the end he was missing for over two hours and found laying in a ditch. He is now very ill laying in a hospital with his with wife by his bedside. This all could have been prevented if a CCTV camera had been installed. Really shows how important these cameras are for these valuable people. For me this is the second family member with dementia to have gone missing, which really makes me more than 100% behind this campaign.

Paula Davey - 07/08/2017

Hi I've donated to your Memory Walk. I worked in one of the best nursing homes and that's. Where my gran slipped away to heaven the staff have been there years and we had plenty of wipes, gloves , pads, bedding and it never smelt like some nursing homes we were not to wear our uniforms in or after work for bugs etc and hygiene, I enjoyed working there and it was challenging I worked 12 hr night shifts and in the morning when day shift came in it was such a good feeling knowing I had made the residents as comfy and helped no matter what , I also spent extra time with some people who had no visitors Braeside house is a home I would recommend (for the blind) just wish more homes were like this one xxxc from Lynne xxx

Lynne Hibernian black - 17/07/2017
Jayne Connery replied...

Dear Lynn

To say we are overwhelmed by your donation is an understatement. Thank you so much. It's carers like you that are holding this care Sector together and many in your profession are not valued as much as you should be reflecting in the hours you work and pay you receive. . CCTV in care homes campaign would like to thank you on behalf of all the families and care staff who supoort us. Thank you !!

Many people are terrified at the prospect of entering the care sustem, and with good reason.

My family is taking legal proceedings against the care home where my mother resided for 2 years until she died earlier this year. She was blind, deaf and had dementia. We put a covert device in her room following suspicions that she was being treated poorly. It revealed horrifying physical cruelty and verbal abuse by poorly trained staff managed by a Board of Directors with scant interest in care.

I fully support this campaign for cctv in common parts of dementia facilities. And when we have won this battle, I will support a further campaign for the same in individual private rooms with consent.

Thank you Jayne for all your efforts. You're doing an amazing job of getting this issue in the news.

Rose Hill - 15/07/2017
Jayne Connery replied...

Rose

Thank you for telling us your story. Unfortunately I know the huge strain poor care places on your whole family and no family should ever have to go through this, not in a facility designed to care. It's an all too familiar happening and the general public are thankfully coming to realise this more. Our campaign for cctv in communal areas is also about picking up preventable neglect in care /nursing homes - much of this occurs in communal areas - falls, mishandling of residents, normally due to staff not being fully trained can be the reasons behind poor care standards as well as no stimulation and not being attended to when calling out. It's important to state there are many great well led care homes out there many having cctv. It's also down to good managers who enforce the highest care standards. It's important to safeguard the carer too - a problematic cause of neglect is due to profit over care, a practice which fails staff also. It's crucial to state this campaign fully supports CCTV in clients rooms - advocating companies like Care Protect Limited care-protect.co.uk a company that install and monitor 24 hour surveillance on the request of the client or if the client has no capacity, families. With the hugely advanced modern surveillance systems out there on the market , lack of dignity /privacy is thankfully no longer a issue and we wholeheartedly agree with this. Our cctv in communal areas of care homes we want this to be made law - without doubt families should be able to place overt cameras in loved ones rooms without any fear of reprisals i.e. Evictions of elderly residents. I urge you to read our Government proposal link on our Home page and hopefully you will get a clearer understanding to what we are all eager to achieve to protect our very vulnerable residents in the care sector.

We wish you and your family all the very best and thank you for supporting us.

I really want to thank Jayne for raising the profile of CCTV and its potential to improve the overall care delivery experience.
We need cameras in communal areas in our care facilities e.g hospitals, care homes etc, we have all seen and heard the horror stories about poor practice in the care sector.

Keep up the good work Jayne and lets all help by pushing for more CCTV in order to make public and private healthcare organisations safer places for us all.

Stephen Watson - 14/07/2017

I cannot say I have a lot of experience of care homes as my sister and I who share care of my mum at home because we're too frightened to trust the care system. Mum is 95 and has Alzheimer's and vascular dementia. She is at the stage where we have had to have an electrical hoist fitted and a hospital bed in her room.
She has only ever stayed in a care home for one weeks respite and had lost half a stone by the time she came home. Our children who visited daily told us at mealtimes she would have gone hungry if they had not fed her as staff put the meals out then cleared the plates at the end of lunch wether meals had been eaten or not.
Although all her clothes had been labelled she came home without many items and what she did have poorly laundered.

My sister is 74,I am 69 and feel if care homes were monitored by cctv we could feel more comfortable leaving mum in their care to have an occasional break. Instead we just soldier on.

My hearts go out to all the people who are unable for one reason or another to care for their ageing,vulnerable parents or partners at home and have to put their trust in a system that's so obviously failing them.

Eileen Herbert - 14/07/2017

I know that My partner Francesca has made contact with you. You have seen the photos of her mum and her injuries. I fully support your campaign for cctv in every home, the brutality has to stop and people held accountable. I sincerely hope you are succesful in your quest

Rab - 13/07/2017

I have a friend whose Mum has dementia, the home is dreadful, and when they suggested moving her, they said well she will be dead in eight weeks, they don't wash or bath her, her pants are so weighted with wee when they arrive they are near to her knees, this is midday, never has she got her own good quality clothes on all with names sewn inside, it's anybody's that are always too big, and they said she says no, and it's " Human Rights " My Mum used to say no, but she still had a bath every day, as you encourage them, they can say no now and yes 5 minutes later, and all this for a £900 a week, and food put on a table and never helped so does not eat, isn't it awful, but thankfully now it's being bought to our attention. Thank you Jayne.

Sue.

Sue at the Smiley Cafe - 12/07/2017
Jayne Connery replied...

How these messages sadden and frustrates me. I know there are many brilliant care homes out there but evidently it's a lottery. This has to stop. I understand your concerns because I have personal experience of shocking care with my loved one but I've said time and time again it was rarely about the carers. Management and providers are to blame here. Lack of training and much profit over care fails our vulnerable and care staff who are limited to the time they can spend with each resident. CCTV in homes would help pick up on these failures and therefore bring the transparency much needed for families and carers. Thank you for supporting us.

Hi Jayne,

I just watched your youtube video for the above subject & was quite touched and angered how your mum was treated in these so called “care homes”.
My elderly mum was recently in a very well known NHS hospital in London for a major operation where I visited her every day & typified all the exact comments you have observed & mention in your video, she ended having a minor stroke whilst in the hospital due to all the traumas , staff, attitude, rudeness & also a lack of training. I believe she has the start of dementia & would like to know how I can volunteer or support with such a great cause that you are promoting ?


Moe

Moe - 11/07/2017

Jayne is a superb ambassador for this campaign, using her knowledge gained by being by her mother's side during her sad journey with dementia as an unwanted companion.
She is inspirational, and I am sure her family are justifiably proud of her, as am I.

AnnE Walsh - 09/07/2017

CCTV would be a huge step forward to prevent abuse occurring within our car homes to our loved ones.
There is no excuse for emotional, physical or financial abuse of those who cannot speak for themselves.
Jayne you are an absolute credit to your mum and I'm proud to support this campaign.

Kirsty-ann Johnstone - 08/07/2017

Big love to you and your Mum Jayne, if she was able to comprehend just how well you take care of her, she'd be as proud as we are! ...Very very proud to have you as our ambassador! XX

Lucy Clarke - 08/07/2017
Jayne Connery replied...

Lucy

I met you when you contacted this Campaign a long time ago now and we have followed your journey too. Also a dedicated daughter who understands the challenges having a mum who needs to be cared for. You too are a credit and we are delighted to have you on board this journey with us xx

I cannot put into words the important work my wonderful friend is doing and I'm sure that this subject is all close to our hearts. Please show your support for this outstanding lady and her paramount cause. Jayne Connery on sky news last night voicing the concerns of neglect in our care system for Dementia.

Sam rotin - 08/07/2017
Jayne Connery replied...

Sam

Thank you so much for your lovely words. Your support to this cause has been unwavering. A huge heartfelt thank you x

Today I received a distinction for my research project on cctv in care homes
I am so proud of myself
My name is Denise and I work as a trainee assistant practitioner in care home on a specialist dementia unit

Denise - 07/07/2017
Jayne Connery replied...

Denise

I remember when you posted on our campaign page asking for members to give their views on this. I'm absolutely delighted you chose this very important subject to write about. There are so many important factors and insights to be raised and I for one am delighted you chose CCTV in care homes. I wish you much success for the future and we are thrilled you've achieved a distinction. Well done and please keep us up dated

This programme confirmed all my worst fears about care homes which is why my sister and I ,elderly ourselves,care for my 95 year old mum who has Alzheimer's and dementia at home as we could not bare to subject her to this level of care. Why are the government procrastinating about CCTV in care homes ???? It shouldn't only be in public areas but with family consent (which I can assure you would be forthcoming) in every room. Left me sad,furious and disgusted.

Eileen Herbert - 19/06/2017
Jayne Connery replied...

Eileen

Your message will resonate with many thousands of families affected by poor care. We follow your journey and you are a huge supporter to wanting to get CCTV made mandatory in care homes. The support you've brought has been incredible and a huge thank you x

I worked in care homes and have witnessed the ill treatment of these patients and believe CCTV in all care homes will be vital in stopping abuse

Jean Dornan - 12/06/2017
Jayne Connery replied...

Hi Jean

Your message mirrors many we receive here daily. Carers are now wanting cctv in homes to protect and safeguard not just residents but staff too. We all know how hard the majority of care staff work and in many cases can have the finger of blame pointed in their direction with no back up available. Carers are our unsung heros and they have shown their support to having cctv be made mandatory in care homes.

Jayne and her mum

Every person upon entering the care system, especially the vulnerable, deserves to be safeguarded. This CCTV campaign is not a reflection of the care administered by our carers, but by those Care Service Providers who place profit over care. Until this stops preventable neglect will carry on, continually failing our vulnerable and dedicated care staff. This Campaign seeks the requirement by law of the installation of CCTV in the communal areas, exits and entrances in ALL care homes

Jayne Connery, Campaign Organiser

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CCTV for Dementia Care Homes Proposal

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Dominic Grieve MP

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